I would not have lasted a minute, literally a minute, on this Earth without God and angels by my side, because I was born. And right as I was born, I went into a respiratory arrest. So, big things that keep me going are friends and family, God. And another thing is looking forward to what's going to happen tomorrow.
Expressing my feelings and then the opportunity to share it with others is just such a gift.
The doctor said, 'He can't last a week.' And I did. And they said, 'There's no way this kid's going to last a month.' And I did. And so they said, 'Two years. He's not going to make it.' Two years. 'Five years. He can't do that.' I lived to be five years. 'He's never going to hit double digits.' And here I am, a new teenager.
God gives me hope that there is something greater than us, something better and bigger than the here and now, that can help us live.
Maybe I wanted to have kids because you want to leave behind lessons, leave behind everything that matters to you. That's how you touch the world. But I have to reconsider what it's like to leave a legacy.
If it came to a magic genie, I would ask him for two extra wishes. One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do.
I do fear death. But what I actually fear is not dying. I mean, true, it will be sad. But I know that there is a better place waiting for me.
People will come up to me everywhere and say, 'Ah, I saw you on 'Larry King,'' and, 'Ah, I saw you on 'Oprah.'' And it's really nice, and a lot of people say, 'Is it a pain?' And I say 'No.' And it's not annoying.
Wars should be fought with words, not bombs, not weapons. And calm words. I think that wars should be fought over a chessboard and a cup of something to drink.
...if you live feeling like Your glass is half empty, well, It may as well be empty all the way.
I want to keep publishing books, and writing and spreading my heartsong through the world.
We're divorced from my father because he did some mean and scary things to us.
Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors.
You know, it's kind of hard because I really - I see kids on their Rollerblades and their bikes, and just running around, climbing trees, and I used to do that. And I loved doing that.
I never question God. Sometimes I say, 'Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?' But then I think and say, 'Why not me?'
I've gotten books published. I've met famous people that are very nice. I look back and I say, 'Wow. Thank you, God, for giving me this gift. And thank you for helping me to keep going.'
